Recently my husband texted me a picture. It was our daughter navigating her way through our front yard on the riding lawn mower. Big deal, right? YES! It’s a celebration because it is yet another thing in the long list of what God has done to prove as He promised that this child is an…
Each year I try to set apart time to raise awareness for Rare Disease Day. This year it is on February 29, cuz that’s rare, and the National Organization for Rare Disorders, NORD, has asked professionals and families to show their stripes. From NORD, “The zebra, with its distinctive stripes, is the official symbol of…
Each February I try to write about our situation in case there are new readers who might not know, or perhaps they are living something similar and could use the encouragement. When I got sick from drinking the bottled water on the Mexican cruise, I was told I was one in 10,000. I had similar…
It’s a butterfly-shaped gland that is small but is so sensitive. I feel at times I should have MD after my name thanks to this little thing, yet I’m always learning. Our daughter has congenital hypothyroidism, Hashimoto’s, and although I believe this falls in the rare disease category, it talks about the Pseudohypoparathyroidism with Albright…
This week I’ve been sharing different aspects of invisible illness as it regards to our family and those who have a diagnosis that is real, but perhaps not visible. My hope is we all take a look at how we approach situations like this and find ways to improve. Today I want to share the…
It was probably eight years ago, maybe longer. The kids were with grandma and my husband and I were on a fact-finding mission. We looked into adopting a senior dog and wanted to visit her before making a decision. It wasn’t local so we plugged the address into a GPS and went on our way….