I’ve mentioned here and there that we have a child with what we deem minor special needs. Her first year was critical and much has stabilized. As she’s maturing, I’ve been preparing myself to watch for new things.
Already lab results have changed and we have a new specialist to call. It would be easy to worry and at times, I fall prey. For the most part, I’ve learned to trust the promise regarding her, that she is an overcomer. And trust the One who gave her that promise and created her. She’s been through so much and has overcome.
In the hardest times where care was constant, her face kept me going. Always smiling. A twinkle in her eye. If she wasn’t falling apart, how dare I? That face continues to encourage me, because it still has that smile that chooses sparkly things, loves to write, and is so creative.
What I learned not too long ago was that face was also an indicator that something was off. There were so many other things to tend to when she was younger everyone missed the signs. The blessing was most people with that diagnosis also were having seizures, and she never did. Another reason she wasn’t diagnosed as early as others.
Even as her face is something for a specialist to realize there is an issue to monitor, that same face ministers to others. She was maybe six weeks old when I was on a Wal-Mart run. I was used to running in and out but that day, and many, many times after, someone stopped me and because of her face, was drawn in. And they open up and start confessing their lives. My life changed that day. I no longer plan to get in and out of places. God’s often stopped everything to have people start sharing with me. I’ve learned to encourage and pray. She keeps smiling. And lives change.
My life has changed thanks to that face. I too look for sparkles and pizazz. I’m not afraid to try new things. I learned there’s quite a fighter in me because of that face. I realized a face can be a prayer request and a ministry at the same time.
This week I had a lot of unplanned moments where I was listening or sharing in ways I didn’t think would be happening. I got thinking, it all started back at Wal-Mart when that person saw that face and walked over. That this week I have new calls to make and new meds to pick up because of that face.
And it’s worth it.
Note: Her round face is part of what tipped her doctor off that she has albright’s hereditary osteodystrophy. Nothing life threatening, but another issue we manage through prayer, a good doctor, and regular lab work.