This week I’ve shared pieces of our journey regarding invisible illness and our daughter. As I read through group pages on FB, friends with invisible illness, and our own experiences, there are certainly things people have said we wish they hadn’t. I thought I would share some of those things so we can be thoughtful…
In years past, I shared stories about my own journey with severe PCOS, infertility and hormonal imbalance. Those were tough days and I’m thankful most of that fight is over. (I had a total hysterectomy in 2008 that relieved 95% of my pain and hormonal issues.) This week my sharing is for our daughter. I…
I’ve told this story before, but I think it explains invisible illness so well that I think it’s worth repeating. Hopefully you take away the lesson that when you look at a person, you probably aren’t getting the entire picture. Our daughter was three years old and just starting to stabilize from chronic conditions. Her…
It’s a weird place to be in. My fight isn’t my own, it’s for our daughter. And part of why I fight is so that she can blend in and enjoy many things that come naturally for her peers. My fight is invisible to her for the most part, but I thought it was time…
What a week! If you follow me on my personal Facebook page you know our daughter has been struggling with an invisible illness that brings about so much pain for her and those around her that it has consumed my thoughts this week. Whether I wanted it to or not, this one issue has been…