February 29 has been designated Rare Disease Day. According to Patient Worthy, In the United States, at least 25-30 million people are living with a rare disease. Many rare diseases are genetic and 95% of them have no treatment options. Other challenges faced by people living with rare diseases include: From Rare Disease Day.og, Over 6000…
Recently my husband texted me a picture. It was our daughter navigating her way through our front yard on the riding lawn mower. Big deal, right? YES! It’s a celebration because it is yet another thing in the long list of what God has done to prove as He promised that this child is an…
When our daughter was in an infant she was diagnosed with airway restrictive disease or something like that. It was asthma, but she was too young to be diagnosed with it was the gist of it. But breathing was hard for her without assistance. As she’s aged, she’s needed the nebulizer less and less. In…